My sister has it and I’m Not Short I’m Pooh Size Shirt it is totally debilitating. It can be managed sort of with medications, but those meds are nasty and hard on the body. Maybe we should make something similar to the ice bucket challenge but for narcolepsy-cataplexy instead. Raise awareness so that maybe we can get closer to a cure, or at the very least, better management.
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Being a Down Syndrome mom is twice the work stress and tears shirt
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